Neuroblastoma is by far the most common type of cancer in infants and the fourth most common type of cancer in children. The Neuroblastoma Children’s Cancer Society states that there are approximately 500 to 1,000 children diagnosed with this disease each year in the United States. Although it accounts for only 8% of all cancers, it is responsible for over 15% of deaths in childhood cancer.
Currently, there is a Neuroblastoma Research Fund at Duke Children’s Hospital with a new treatment, but no funds. Pediatrician, Dr. Timothy A. Driscoll, is the principle investigator leading the way for this new research. He also happens to be the physician for another inspiring miracle. Her name is Leigha Martinelli, of Burlington, N.C. She was 8 years old when she was diagnosed with Stage 4 Neuroblastoma. After two and a half years in the hospital, Leigha is presently in remission with a dormant tumor in her right femur. This is where the wonderful twist begins that unites the Mason Lindley Miracle Foundation to this cause. The familes of Mason and Leigha constantly crossed paths at Duke usually just missing one another during frequent admissions and discharges. Each family was inspired by the other’s story and courage despite seemingly hopeless circumstances; yet both kids overcame the odds to recover and inspire countless lives and each other. That part just does not seem to end for either even in spite of Mason’s absence. Thus, the Miracle Foundation is actively involved in advocating, promoting and supporting the focus of this study for both Leigha and countless other children and families.
This new study treatment, an “MABG” treatment, would travel to the tumor and kill cells only in that area. It is a more localized form of treatment that will result in a lesser dose of radiation and toxic side effects. This is unlike the “MIBG” treatment that Leigha has already endured and is no longer a treatment option.
This cancer research needs to be done immediately for those facing diminishing hope with each passing day. This research will not only help children faced with this terrible cancer, but will also help with adult cancers and brain cancer . The FDA requires that two studies be done before the treatments can be approved. The cost to get these studies off the ground is $220,000. All donations are sent directly to the research fund. The goal is for 440 groups or individuals to each raise $500.00; however, a donation of any amount will be greatly appreciated. For a donation of $500.00 or more, you will receive a “440 Neuroblastoma Research” t-shirt with scripture.
Please make all checks payable to:
DUMC Account No. 3915208 Neuroblastoma
and you can mail them to:
Neuroblastoma Research Fund
DUMC 3828
Durham, NC 27710
Please remember to include the account number on all of your checks so that the funds are deposited appropriately. Also, write Neuroblastoma Research in the “for “portion of your check .It is imperative to get this research up and running as soon as possible and it cannot be done without your help and support. If you can’t help financially; but know someone who can; please help out by passing this on to them and praying for the many children who need this help. Again please remember; any donation will be graciously accepted.
For more information on Neuroblastoma; go to
www.neuroblastomacancer.org
